Case Scenario: You are a junior doctor working on a cardiology ward. Mr ABC, aged 23 years,
has congenital heart disease. He was admitted from clinic for further investigations into the cause of his breathlessness. The view of the cardiac team is that it will not be possible to give best advice about prognosis and treatment without information from a cardiac catheterisation study, but he is refusing to consent.
Your task: is to determine what concerns Mr ABC has and explain the purpose of further investigation.
Key issues to explore
- First find out what the patient knows about his condition: he may be concerned that nothing can be done or be in denial about the seriousness of the problem.
- Then establish what he knows about cardiac catheterisation and his fears about the procedure: some patients are worried about pain and discomfort, whereas others worry about complications. Try and put any such fears in perspective.
- Explain any alternative investigative strategies that are available, but also why a cardiac catheterisation study is needed to give him best advice about his condition.
- If possible offer him information booklets and if there is a specialist nurse available, ask him or her to speak with the patient.
Key points to establish
The patient does not have to undergo any investigation or treatment unless he agrees to it. He will still receive care even if he does not undergo the investigations recommended, but a proper investigation may improve the care that can be given to him and thus alleviate some of his symptoms.
Appropriate responses to likely questions
Patient: I feel fine.
Doctor: I hear what you say, but you went to the doctor because your breathing isn’t as good as it should be and it looks as though this is due to a problem with your heart.